NCSA Letter to Kentucky Officials Supporting Cameras in a Group Home

The following is a letter from NCSA to Kentucky officials considering in-home cameras in a community group home as a reasonable accommodation for a young woman with severe autism.

___________

March 27, 2024

To whom it may concern:

National Council on Severe Autism represents the interests of individuals and families affected by severe and profound autism and related disorders which are often incapacitating. Those we represent are exceedingly vulnerable individuals who, due to extreme cognitive and functional impairment, are unable to communicate their wants and needs, but also are unable to relate their experiences.  

Those living in Community Homes are especially vulnerable in that they are left alone with caregivers who entirely control the narrative about what transpires in the home. While cameras in community homes are not a reasonable accommodation for many with disabilities, owing to their capacity for reason and communication, for those with severe and profound autism and related disorders, the cameras are a reasonable accommodation. Like a wheelchair ramp, they allow access to a standard level of community engagement, via a "prosthetic" device, the camera, which can communicate facts on behalf of the severely disabled individual, who is without a voice. Cameras in their community homes serve as their eyes and their voices. We at NCSA wholeheartedly endorse cameras as a "reasonable accommodation" in this case, as required by the Fair Housing Act.

Thank you for your consideration of our comments. If we can be of any assistance please do not hesitate to reach out to us at info@ncsautism.org.

Very truly yours, 

Jill Escher
President

NCSAutism.org

Jill Escher, President

Jill Escher is president of the National Council on Severe Autism and the mother of two children with nonverbal forms of autism. Through the Escher Fund for Autism she promotes and funds research on the genetic toxicology of autism and related neurodevelopmental conditions, and she has served on the governing council of the Environmental Mutagenesis and Genomics Society, where she co-chairs its Germ Cell and Heritable Effects special interest group. She was president of Autism Society San Francisco Bay Area from 2013 to 2019 and, through her family business, Claradon Properties, provides housing to adults with developmental disabilities in the Bay Area. See more of her work at jillescher.com.

https://www.jillescher.com/
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NCSA Letter to Tennessee Officials in Support of Housing Options

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NCSA Comments for Federal PCPID Meeting, March 2024