Programs for Severe Young Adults in New York State: Join Our Fight!

By Pam Klein

Families in New York State recently formed a grassroots organization, “Parents for Appropriate Adult Services,” to fight for state and federal funding for improved day programs and group homes appropriate for individuals over age 21 who have severe developmental and intellectual disabilities in Rockland County, and other counties in New York State. 

The problem is acute and obvious: most day programs and group homes aren’t equipped to appropriately handle our sons and daughters who have maladaptive behaviors, poor safety awareness, poor self-help skills, and lifelong severe disabilities. Their needs, and their numbers, have been trivialized and ignored for too long.

If you have sons and daughters with severe developmental or intellectual disabilities in New York, please join our Facebook group and join our fight!

We will work with local and state agencies to develop high quality day programs and group homes for individuals over age 21 who are low functioning and have the strongest support needs.

We have been actively meeting with local New York state senators and assembly members, and we have met with a representative from the governor’s office. We are working closely with individuals in Rockland County’s Mental Hygiene Department, the County’s Office for People with Disabilities and Westchester Institute for Human Development and The DDSO. 

We are members of the grassroots parent advocacy organization, GROW in Westchester County, too. We are in the process of visiting day programs in the area and meeting with directors and service coordinators. 

Besides being parents of sons and daughters who have severe developmental and intellectual disabilities, we are all professionals in many fields, like law, law enforcement, finance, special and regular education, social work and psychology. We are pooling our knowledge and experience together.  

Most of our grown children cannot safely and productively navigate the new “Without Walls” type programs. As a result, too many of our grown children are ending up rejected from our disability system, isolated at home most of the day with no meaningful social interactions with peers. This is unacceptable! 

Please join our fight:

Email: paasrockland@gmail.com

Facebook: https://www.facebook.com/PAASRockland/

Jill Escher, President

Jill Escher is president of the National Council on Severe Autism and the mother of two children with nonverbal forms of autism. Through the Escher Fund for Autism she promotes and funds research on the genetic toxicology of autism and related neurodevelopmental conditions, and she has served on the governing council of the Environmental Mutagenesis and Genomics Society, where she co-chairs its Germ Cell and Heritable Effects special interest group. She was president of Autism Society San Francisco Bay Area from 2013 to 2019 and, through her family business, Claradon Properties, provides housing to adults with developmental disabilities in the Bay Area. See more of her work at jillescher.com.

https://www.jillescher.com/
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