Getting Real About Autism’s Exponential Explosion
The exponential increase in the autism caseload in the California Developmental Services system, which is limited to cases of autism with substantial developmental disability.
Uniting for Change: New Jersey NCSA Chapter's Inaugural Mixer
On Thursday, September 12, 2024, the New Jersey chapter of the National Council for Severe Autism (NCSA) held its inaugural in-person mixer. The event was marked by a palpable sense of energy and excitement. Parents of individuals with profound autism from across New Jersey gathered alongside experts in the field to unite with the goal of advancing policy in critical areas and effecting actionable change.
Effecting Meaningful Change with Grassroots Advocacy
What’s a grassroots network anyway? How can it help me? These are valid questions. Let’s talk about it.
Parents of Adults with Severe Autism Express Concerns Over Tennessee’s “Jillian’s Law”
Jail is not the place for someone with developmental disabilities, not anywhere, and certainly not in Tennessee. While most the news coverage on Jillian’s law is referencing the challenges in staffing and facility availability, none are discussing the problem of those individuals who are refused care by hospitals even when beds and staffing are available.
National Council on Severe Autism Announces Appointment of Its First Executive Director
In this new role, Kancir aims to foster authentic recognition of the disparities faced by the severe autism community and partner with other groups to break access barriers, fill service gaps, and enhance the overall quality of life for individuals with severe autism and related disorders.
NCSA Submits Public Comment to IACC on Family Caregiving
NCSA recommends the IACC authorize a report on autism caregiver burden across the lifespan, including specific analysis for the profound autism population. Concerns should include caregiver physical health, mental health, financial stability, educational and vocational opportunities, food and housing security, and overall quality of life. The report should include a strategic plan outlining specific solutions to secure the well-being of autism family caregivers.