Resource Library

NCSA’s diagnostic overshadowing family resource: a workup algorithm, a 60-second catatonia screen, and five peer-reviewed studies for your clinical team.

Protection & Advocacy agencies (P&As) comprise the nation’s largest provider of legally-based advocacy services for people with disabilities

free, on-demand Partners in Policymaking Online Curriculum consists of five courses that can be completed by anyone seeking to understand key issues impacting people with developmental disabilities

Americans with Disabilities Act complaint, including any complaint alleging Olmstead violations, alleging disability discrimination against a State or local government by mail or email

materials developed through CDC activities and based on key findings from the latest ASD research

Dynamic list of all current and concluded state programs authorized under Section 1115 / 1915 of the Social Security Act

a Federal advisory committee that coordinates Federal efforts and provides advice to the Secretary of Health and Human Services on issues related to autism spectrum disorder (ASD)

Federal overview of Medicaid’s role in covering autism services, including coverage pathways and federal guidance resources

supports and conducts research on what causes autism, how best to detect signs of autism, how best to treat autism and its symptoms, and other topics

SSA compilation of guardianship and alternatives-to-guardianship laws by state; a starting point for families navigating legal decision-making authority

ACCSES impacts public policy and creates connections to help ACCSES members in providing a broad range of services, supports, and choices for people with disabilities

To provide a forum for healthcare professionals who provide clinical care to people with intellectual & developmental disabilities (IDD) and neurodevelopmental disorder (ND/ID) and improve the quality of healthcare for individuals with IDD and ND/ID

to promote, model, and advocate for the full inclusion of autistic adults and their families in the life of our communities; and to expand choice and opportunity in housing, employment, and social participation

to support autism research by providing funding and other assistance to scientists and organizations conducting, facilitating, publicizing and disseminating autism research

To create connections, empowering everyone in the Autism community with the resources needed to live fully

strategies and resources to address challenging behaviors and offer support during difficult situations

to protect consumers of behavior-analytic services by systematically establishing, promoting, and disseminating professional standards

a non-profit trade association of provider organizations serving individuals with autism spectrum disorder

to protect and enforce the legal and civil rights of students with disabilities and their families

to improve the quality of life for family caregivers and the people who receive their care

transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes

to promote understanding, acceptance, and the full potential of each individual with autism by empowering families

to improve safety through voluntary registration, proactive communication, sensory tools, and training for emergency personnel to ensure safe interactions

to assist families with children with autism spectrum disorders (and later other mental health conditions) to obtain medically necessary treatments through their health plans, so that they can ultimately reach their full potential

Embracing God’s call, Mosaic relentlessly pursues opportunities that empower people

To elevate the status of direct support professionals by improving practice standards, promoting system reform, and advancing their knowledge, skills and values

to promote leadership in the expansion of knowledge, training, policy, and advocacy for mental health practices that improve the quality of life for individuals with dual diagnoses (Intellectual/Developmental Disability and co-occurring Mental Health Conditions, or IDD/MH) in their communities

to represent and support private special education providers and their leaders by advocating for, promoting, and ensuring high-quality programs and services

to respond to the most urgent needs of the autism community, providing real help and hope so that all affected can reach their full potential

To improve the health, connection, and quality of life for individuals requiring 24/7 care through targeted, inclusive research and dedicated advocacy

to support caregivers by providing recognition and resources

Uniting to protect and advance the rights of individuals with intellectual and/or developmental disabilities (I/DD) to live, work and thrive in a community or setting of their choice

to ensure that all people with I/DD and autism and their families are able to make informed choices from a full range of residential options and employment opportunities

Parent-led Facebook page calling for change to the crisis in crisis care

This support group is for parents and primary caregivers of children with severe autism

To end the emotional isolation that families living with severe problem behaviors experience while empowering them to heal by sharing their experiences and knowledge

to create awareness and provide education to both the public and healthcare professionals so that proper diagnosis can be made and people suffering from this devastating yet curable condition can receive the treatment they need

to improve the quality of life of SYNGAP1 patients through the research and development of treatments, therapies and support systems

improve the lives of people affected by epilepsy through education, advocacy, research, and connection

to find effective treatments and ultimately a cure for Fragile X syndrome

to build a global community that empowers and supports families and individuals with FOXP1 syndrome by sharing knowledge, inspiring hope, supporting research, and raising awareness

to make today better and the future brighter for everyone living with Phelan-McDermid syndrome — from the moment of diagnosis to the delivery of treatments and cures

to find cures for Rett syndrome as efficiently and quickly as possible

dedicated to finding a cure for STXBP1-Related Disorders (STXBP1-RD) while improving the lives of our patients and families

to improve the quality of life for everyone affected by tuberous sclerosis complex (TSC) by catalyzing new treatments, driving research toward a cure, and expanding access to lifelong support