A Letter to Sia from an Autistic fan: Thank You for Representing a Girl with Severe Autism

 The protagonist of “Music,” a film by Australian artist Sia.

December 8, 2020

Dear Sia:

I first heard about your work and music approximately ten years ago.  I find your voice and lyrics to be interesting, unusual, and dynamic.  Your songs and music don’t just have a message; they really draw the listener in.

I am on the autism spectrum, and I am looking forward to seeing your film Music.  Although I am high-functioning, I see that Music the character is far more profoundly impaired.  I believe that representing different kinds of autistic individuals is important, and from watching the trailer, it seems that you have done an excellent job in that regard.

Many autistic individuals in TV shows and movies are verbal and highly skilled in certain areas.  For instance, Shaun Murphy in The Good Doctor is a highly gifted autistic surgeon.  Sam Gardner in Atypical is talented in science and drawing.  Additionally, both of them are white men, whereas Music is a girl.

Severe autism in general is a very difficult condition.  The vast majority of individuals with this condition will never live independently, and self-injurious behavior is also a common problem.  There are also potential secondary issues such as seizures.  Only a very small percentage of severely autistic individuals have savant skills.

I know that an important part of acting is being able to follow social cues.  It would be very hard for someone with severe autism to play this role, as they might not understand a lot of the requirements that they have to fulfill to follow a character role.  Personally, it can be hard for me to get into character when needed.

I am surprised that many people with far milder forms of autism would harshly judge your film based only on the trailer.  In fact, I found Music the character to be highly likable.  The dances seem to be very colorful and interesting.  I will definitely find the plot development between Zu, Ebo, and Music to be very insightful.

Sincerely,

Yuval Levental

Yuval Levental is a young man with autism who lives in New York state. Follow him on Twitter @YuvalLevental

Jill Escher, President

Jill Escher is president of the National Council on Severe Autism and the mother of two children with nonverbal forms of autism. Through the Escher Fund for Autism she promotes and funds research on the genetic toxicology of autism and related neurodevelopmental conditions, and she has served on the governing council of the Environmental Mutagenesis and Genomics Society, where she co-chairs its Germ Cell and Heritable Effects special interest group. She was president of Autism Society San Francisco Bay Area from 2013 to 2019 and, through her family business, Claradon Properties, provides housing to adults with developmental disabilities in the Bay Area. See more of her work at jillescher.com.

https://www.jillescher.com/
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