Isolated and Neglected in an HCBS Community Living Home
A young woman is suffering in a group home. Her mother makes an appeal to Kentuckians who have adult loved ones with severe and profound autism.
Letter Addresses Discrimination Against the Severely Disabled in Federal I/DD Committee
Letter by Dawn Kovacovich to the President’s Committee for People with Intellectual Disabilities (PCPID) points out the committee’s discrimination against those with the most severe cognitive disabilities.
When Profound Autism Falls Off the Cliff into the Abyss
“While everyone “celebrates” autism, no one is coming up with desperately needed solutions for the adults who are most severely affected.” By Alicia Mesa
We Need Profound Acceptance of Profound Autism
“It profoundly disturbs me that choices are limited for those who have the greatest disabilities.”
Media Misstep: Non-Profound Autism Definitely Does Not Mean "Mild"
While we embrace the progress of the profound autism label, we must be vigilant to ensure the term does not obscure the broader population clearly and often severely disabled by autism but who do not meet criteria for "profound" — or be used to trivialize the skyrocketing rates of autism.
Feda Almaliti: Locked Out of My Refrigerator and Other True Tales from the Life of a Weary Autism Mom
“Autism can be shockingly expensive. Not just the therapies and schools and housing, but the everyday Tasmanian Devil-like damage for which there is no insurance or help.”