• Home
    • Press Room
    • Get Involved
    • Blog
    • Guiding Principles
    • Who we are
    • Social
    • FAQs
    • Contact
    • Photo Release
    • National Network
    • Take Action
    • State Chapters
    • Position Statements
    • One Pagers
    • Find Contacts
    • DC Event 2025
    • Webinars
    • Podcast
    • Resources
    • LINKED Autism Safety Project
    • State Nonprofit List
    • Autism Makers
    • Outpatient Treatment Resources
    • Inpatient Treatment Resources
    • Psychiatric Treatment Resources
    • ECT Providers
  • Donate
Menu

National Council on Severe Autism

PO Box 26853
San Jose, CA, 95159
Phone Number

National Council on Severe Autism

  • Home
  • Recognition
    • Press Room
    • Get Involved
    • Blog
    • Guiding Principles
    • Who we are
    • Social
    • FAQs
    • Contact
    • Photo Release
  • Policy
    • National Network
    • Take Action
    • State Chapters
    • Position Statements
    • One Pagers
    • Find Contacts
    • DC Event 2025
  • Solutions
    • Webinars
    • Podcast
    • Resources
    • LINKED Autism Safety Project
    • State Nonprofit List
    • Autism Makers
    • Outpatient Treatment Resources
    • Inpatient Treatment Resources
    • Psychiatric Treatment Resources
    • ECT Providers
  • Donate

Why I Need the Term "Profound Autism"

December 20, 2023 Jill Escher

“We cannot have equity without development of waivers that consider the basic realities of profound autism. Our children have very different needs than the people opposing use of the term.”

Read more
2 Comments

Lost in a "Bermuda Triangle" of Profound Autism

November 17, 2023 Jill Escher

The new memoir Girl Storm by Peg Kerswell reveals a hidden world where inclusion doesn’t apply.

Read more
Comment

A New Reference Guide to I/DD Topics

October 30, 2023 Jill Escher

“Essential Lexicon and Resource Guide” offers an overview of our I/DD system in an easy-to-access format.

Read more
1 Comment

The NIH Proposes Erasing "Reducing Disability" From Its Mission. NCSA Is Incredulous

October 24, 2023 Jill Escher

With this proposal the NIH threatens to jump into a foreign moral universe detached from its core duties and in conflict with its congressional mandates and the urgent needs and desires of American citizens and taxpayers. We oppose it in the strongest terms possible.

Read more
7 Comments

The TikTok Effect: How the Social Media App Helps Spread Autism Misinformation 

October 18, 2023 Jill Escher

“The ‘autism’ I see in general on TikTok is hardly recognizable to me. The misinformation being shared is becoming increasingly dangerous to the autistics with more profound needs.”

Read more
7 Comments

Profound Autism: A Sister Shares Her Fears About a Bleak Future

October 16, 2023 Jill Escher

“If he moved in with me, not only would I live with constant danger and isolation, but I would also face financial and social ruin.”

Read more
Comment

The Lasting Trauma of a Severe Autism Sibling

October 2, 2023 Jill Escher

“The volatility of the environment I grew up in permanently altered my brain…. The world does not seem to understand, nor care, that autism affects more than my brother. Autism has had a severe impact on how I grew up, and the mental health issues I will have to face for the rest of my life.” First of a two-part series.

Read more
12 Comments

The September 26th Project 2023: An Autism Family's Cautionary Tale

September 26, 2023 Jill Escher

The family was incredibly lucky that Sandhya was home and outside; that the fire did not start at night while the family slept ("It would have likely been fatal," she said).

Read more
1 Comment

Watch: The September 26th Project 2023 Video

September 25, 2023 Jill Escher

When disaster strikes, "sometimes, the outcome is senselessly tragic, forever altering the quality of life for the entire family unit. The September 26th Project is dedicated to raising awareness about emergency preparedness for all families."

Read more
1 Comment

NCSA Seeks Proportional Representation for Profound Autism at IACC

September 18, 2023 Jill Escher

NCSA submitted the following public comment to the federal Interagency Autism Coordinating Committee for consideration at its October 11, 2023 meeting.

Read more
1 Comment
← Newer Posts Older Posts →
Support Us

Your donations will help us cover our start-up and overhead costs. 

© 2020-2025 National Council on Severe Autism
info@ncsautism.org


Sign up to receive NCSA news and updates.

Name *

Thank you for signing up for NCSA news and updates!

 

Your donations help support our mission.


As an Amazon Associate NCSA earns from qualifying purchases