NCSA Letter to Kentucky Officials Supporting Cameras in a Group Home

The following is a letter from NCSA to Kentucky officials considering in-home cameras in a community group home as a reasonable accommodation for a young woman with severe autism.

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March 27, 2024

To whom it may concern:

National Council on Severe Autism represents the interests of individuals and families affected by severe and profound autism and related disorders which are often incapacitating. Those we represent are exceedingly vulnerable individuals who, due to extreme cognitive and functional impairment, are unable to communicate their wants and needs, but also are unable to relate their experiences.  

Those living in Community Homes are especially vulnerable in that they are left alone with caregivers who entirely control the narrative about what transpires in the home. While cameras in community homes are not a reasonable accommodation for many with disabilities, owing to their capacity for reason and communication, for those with severe and profound autism and related disorders, the cameras are a reasonable accommodation. Like a wheelchair ramp, they allow access to a standard level of community engagement, via a "prosthetic" device, the camera, which can communicate facts on behalf of the severely disabled individual, who is without a voice. Cameras in their community homes serve as their eyes and their voices. We at NCSA wholeheartedly endorse cameras as a "reasonable accommodation" in this case, as required by the Fair Housing Act.

Thank you for your consideration of our comments. If we can be of any assistance please do not hesitate to reach out to us at info@ncsautism.org.

Very truly yours, 

Jill Escher
President

NCSAutism.org

NCSA Comments for Federal PCPID Meeting, March 2024

NCSA Comments for President's Committee for People with Intellectual Disabilities, March 21, 2024 meeting.

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Direct Support Professionals
Increased pay based on level of care [LOC] to incentivize DSPs to take more challenging cases.
Provide DSPs access to specialized behavior intervention training.
Require agencies to maintain a higher percentage of high LOC cases.
Provide fee schedule incentives to agencies for higher LOC.

Employment
Conduct a study on states that have eliminated 14c to determine how many former participants are now in competitive integrated employment. What, if any, meaningful activity are the former participants engaged in and at what frequency? Stay any further 14c eliminations until the results of the study can be analyzed.

Community Living
Prohibit blanket restrictions on staff ratios and daily rates. Services should be provided at the level necessary based on an individual’s person-centered plan.
Adopt true person-centered planning. Integrated does not mean necessarily better, nor appropriate, nor desired for all persons. Dorm-style living, farmsteads, and other settings may be preferred but are prohibited by some states, regardless of a person’s choice.

Federal Support Programs
For people with profound IDD who are unable to be serviced through Pell Grants, SEO grants, and work-study programs, provide a comparable amount as a grant for equipment (farming, photography, exercise, etc.) to improve meaningful daily activity based on the goals of the person-centered support plan.