NCSA Public Comment on the Draft IACC Strategic Plan 2026–2028
DC26 CMS Leave-Behind
DC26 Caregiver Leave-Behind
DOJ July 2026
DC26 Letter to CMS
DC26 Caregiver Research Brief
DC26 Hill Visits Briefing
NCSA Public Comment on the 2028 HCBS Quality Measure Set (CMS-2453-NC)
RE: Hearing on Lowering Health Care Costs for All Americans: An Examination of the U.S. Provider Landscape (March 18, 2026) — HCBS Costs and Outcomes for Individuals with Severe Autism
NCSA Hill Brief: Leveraging the Executive Order on Crime and Disorder to Advance Severe Autism Housing and Civil Commitment Reform — July 2025
NCSA's July 2025 Hill briefing outlines how the administration's Executive Order on crime and disorder opens policy channels in civil commitment, housing-first mandates, and HCBS Settings Rule reform for adults with severe autism.
NCSA Letter to CMS: Rescind the HCBS Settings Rule — March 2025
NCSA urges CMS Deputy Administrator Drew Snyder to rescind or amend the Obama-era HCBS Settings Rule, which has created crippling regulatory barriers preventing individuals with severe and profound autism from accessing appropriate residential services.
NCSA Hill Brief: Declaring Autism a Public Health Emergency — 2025
NCSA urges the HHS Secretary to declare autism a Public Health Emergency under Section 319 of the Public Health Service Act, citing the profound autism crisis affecting 26.7% of children with ASD.
NCSA Letter to the Kentucky General Assembly: Support SB 30 — Video Monitoring in Group Homes for People with Severe Disabilities (January 2025)
NCSA Executive Director Jackie Kancir's January 2025 letter to the Kentucky General Assembly urging support for SB 30, which would authorize guardian-approved video monitoring in group homes — documenting the legal, constitutional, and empirical case that cameras protect those who cannot protect themselves.
NCSA Letter to ACL: Inclusion Must Mean Everyone — Autism Priorities for the Administration on Community Living (2025)
NCSA presents priorities for the Administration on Community Living, arguing that federal DD Act programs systematically exclude individuals with severe autism who cannot self-advocate — and calling for true inclusion that accounts for those with the highest support needs.
NCSA Hill Brief: Requesting a GAO Investigation into Housing for Adults with Severe Autism — 2025
NCSA urges Congress to direct the Government Accountability Office to investigate housing options and regulatory barriers for adults with severe and profound autism, where HUD and CMS policies conflict in damaging ways.
NCSA Letter to HHS, NIH, CDC: Withdraw 'Autism Acceptance Month' Designation — September 2024
NCSA wrote to the heads of HHS, NIH, NIMH, and CDC to challenge the unilateral designation of April as 'Autism Acceptance Month,' arguing the action was made without public input, trivialized the severe autism crisis, and systematically sidelined the grim realities of profound autism.
NCSA Oral Testimony to the IACC: Family Caregiving for Severe Autism — July 2024
NCSA Executive Director Jackie Kancir's July 2024 oral testimony to the IACC on family caregiving, delivered from the perspective of families living in constant crisis — and honoring NCSA co-founder Feda Almaliti, who died in a fire she could not escape because her son with severe autism could not be convinced to flee.
NCSA Public Comment to the IACC: Family Caregivers of Individuals with Severe Autism — June 2024
NCSA's June 2024 public comment to the IACC on family caregivers argues that the lifelong, 24/7 nature of extreme caregiving for individuals with profound autism is categorically different from typical caregiving — and demands targeted longitudinal research and equal IACC representation.
NCSA Statement: Commending Progress on the Autism CARES Act — June 2024
NCSA commended the House Energy and Commerce Committee for amending H.R. 7213 to include language recognizing individuals with profound autism across the full range of cognitive, communicative, behavioral, and adaptive functioning — and care necessary for physical safety.
NCSA Support for Tennessee HB 2497 — Nonprofit Disability Housing Options (March 2024)
NCSA's March 2024 letter and testimony to the Tennessee House Committee on Health supporting HB 2497, arguing from years of national policy analysis that nonprofit residential communities for adults with disabilities increase community access and quality of life — and do not constitute segregation.