NCSA Hill Brief: Leveraging the Executive Order on Crime and Disorder to Advance Severe Autism Housing and Civil Commitment Reform — July 2025
NCSA's July 2025 Hill briefing outlines how the administration's Executive Order on crime and disorder opens policy channels in civil commitment, housing-first mandates, and HCBS Settings Rule reform for adults with severe autism.
NCSA One-Pager: The Direct Care Workforce Crisis for Severe Autism — February 2024
NCSA's February 2024 one-pager makes the case that the direct support professional shortage is not an inconvenience but a crisis — one that forces families out of the workforce, fills emergency rooms, and leaves the most vulnerable adults with autism without the trained care they require.
NCSA Comment to ACL: Severe Autism Families Left Out of the National Strategy to Support Family Caregivers — November 2022
NCSA submitted detailed comments on ACL's 2022 National Strategy to Support Family Caregivers, identifying critical gaps including the invisibility of severe autism caregivers, the threat of competitive employment bias, and the near-total absence of guardianship protections.
NCSA Letter to Oregon: Urgent Need for 1135 Waiver to Pay Extreme Family Caregivers — May 2022
NCSA's May 2022 letter to Oregon state officials urging extension of the COVID-era 1135 waiver that allowed family members of children with severe disabilities to be paid as caregivers — documenting the extreme caregiving situations (diapering 200-pound adults, preventing rock ingestion, monitoring seizures) that go far beyond ordinary parenting.