NCSA One-Pager: The Crisis of 'Empty Waivers' for the Profoundly Autistic — February 2024
NCSA's February 2024 one-pager documents the systemic failure of HCBS Medicaid waivers for individuals with severe autism — waivers that exist on paper but deliver no services because providers refuse to accept clients with complex behavioral needs.
NCSA One-Pager: The Direct Care Workforce Crisis for Severe Autism — February 2024
NCSA's February 2024 one-pager makes the case that the direct support professional shortage is not an inconvenience but a crisis — one that forces families out of the workforce, fills emergency rooms, and leaves the most vulnerable adults with autism without the trained care they require.
NCSA Comment to ACL: Severe Autism Families Left Out of the National Strategy to Support Family Caregivers — November 2022
NCSA submitted detailed comments on ACL's 2022 National Strategy to Support Family Caregivers, identifying critical gaps including the invisibility of severe autism caregivers, the threat of competitive employment bias, and the near-total absence of guardianship protections.