NCSA Letter to Oregon: Urgent Need for 1135 Waiver to Pay Extreme Family Caregivers — May 2022

NCSA's May 2022 letter to Oregon state officials urging extension of the COVID-era 1135 waiver that allowed family members of children with severe disabilities to be paid as caregivers — documenting the extreme caregiving situations (diapering 200-pound adults, preventing rock ingestion, monitoring seizures) that go far beyond ordinary parenting.