NCSA Oral Testimony to the IACC: Family Caregiving for Severe Autism — July 2024
NCSA Executive Director Jackie Kancir's July 2024 oral testimony to the IACC on family caregiving, delivered from the perspective of families living in constant crisis — and honoring NCSA co-founder Feda Almaliti, who died in a fire she could not escape because her son with severe autism could not be convinced to flee.
NCSA Public Comment to the IACC: Family Caregivers of Individuals with Severe Autism — June 2024
NCSA's June 2024 public comment to the IACC on family caregivers argues that the lifelong, 24/7 nature of extreme caregiving for individuals with profound autism is categorically different from typical caregiving — and demands targeted longitudinal research and equal IACC representation.
NCSA Comment to ACL: Severe Autism Families Left Out of the National Strategy to Support Family Caregivers — November 2022
NCSA submitted detailed comments on ACL's 2022 National Strategy to Support Family Caregivers, identifying critical gaps including the invisibility of severe autism caregivers, the threat of competitive employment bias, and the near-total absence of guardianship protections.