NCSA Letter to HHS, NIH, CDC: Withdraw 'Autism Acceptance Month' Designation — September 2024
NCSA wrote to the heads of HHS, NIH, NIMH, and CDC to challenge the unilateral designation of April as 'Autism Acceptance Month,' arguing the action was made without public input, trivialized the severe autism crisis, and systematically sidelined the grim realities of profound autism.
NCSA Letter to Sen. Menendez and Rep. Smith: Autism CARES Act Reauthorization — Concerns and Request for Meeting (January 2024)
NCSA wrote to the lead sponsors of the Autism CARES Act reauthorization in January 2024, arguing that 18 years of CARES funding have failed to address the autism crisis and urging bold reinvention — including a new NIH Office of Autism Research to replace the captured IACC.
NCSA Letter to the IACC: Against Sanitized, Neutral Language in the Autism Strategic Plan — October 2022
Signed by the full NCSA board, this October 2022 letter to IACC Chair Joshua Gordon protests the committee's move to cleanse the autism Strategic Plan of clinical language — arguing that sanitized, strengths-based language actively harms the severe autism community by denying the realities that justify federal research funding.