Share Your Story

Your Voice Reaches Families Who Need It — and Policymakers Who Must Hear It.

Recording takes five minutes. No account required. You can re-record as many times as you want before you submit. Choose a topic below and speak your truth.

1 Pick a topic
2 Record video or audio from any device
3 Re-record until you're ready
4 Submit when satisfied
Topic 1 · General

Tell Your Story: Severe Autism

Help people understand what life with severe autism actually looks like — the daily reality that statistics and advocacy language often erase.

  • Please introduce yourself and your connection to severe autism.
  • What do you wish more people understood about someone you care for with severe autism?
  • What one change could make the biggest positive difference for families like yours?
Record Now ›
Topic 2 · Housing

Advocate for Housing

The long-term housing crisis for adults with severe autism is invisible to most policymakers. Your story changes that. Describe what your family has faced and what it would take to fix it.

  • What barriers have you faced in finding appropriate long-term housing for your loved one?
  • What would an ideal long-term housing solution look like for your family?
  • What message do you have for the policymakers who control these decisions?
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Topic 3 · Research

Advocate for Research

Research funding priorities are shaped by who speaks loudest. Tell us where your family lives in the gaps — and where science needs to go to reach people like your loved one.

  • Has any technology — wearables, telehealth, assistive devices — made a meaningful difference for your family?
  • What comorbidities (catatonia, aggression, self-injury, seizures) need more research urgently, and why?
  • What would you say directly to the policymakers who control research funding?
Record Now ›

What to Expect When You Record

  • No app or account needed. Everything records right in your browser — from your phone, tablet, or computer.
  • Three questions, under five minutes. You control the pace. There is no timer.
  • Delete and redo as many times as you need. Nothing is submitted until you say it is.
  • Video or audio only — your choice. If you prefer not to be on camera, record audio only.
  • NCSA reviews all submissions before anything is published. Your story is handled with care.