Commentary: A full semantic toolbox is essential for autism research and practice to thrive

A new commentary published in the journal Autism Research, the journal of the International Society for Autism Research, counters the call by several neurodiversity advocates to limit language and terms relating to autism. Three of the authors serve on the NCSA board: Alison Singer, Amy Lutz and Jill Escher.

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Abstract

Individuals diagnosed with autism spectrum disorder (ASD) present with a highly diverse set of challenges, disabilities, impairments and strengths. Recently, it has been suggested that researchers and practitioners avoid using certain words to describe the difficulties and impairments experienced by individuals with ASD to reduce stigma. The proposed limitations on terminology were developed by only a subset of the autism community, and the recommendations are already causing negative consequences that may be harmful to future scientific and clinical endeavors and, ultimately, to people with ASD. No one should have the power to censor language to exclude the observable realities of autism. Scientists and clinicians must be able to use any scientifically accurate terms necessary to describe the wide range of autistic people they study and support, without fear of censure or retribution.

Authors:
Alison Singer, Autism Science Foundation
Amy Lutz, PhD, History and Sociology of Science, University of Pennsylvania
Jill Escher, National Council on Severe Autism
Alycia Halladay, PhD, Department of Pharmacology and Toxicology, Rutgers University

Jill Escher, President

Jill Escher is president of the National Council on Severe Autism and the mother of two children with nonverbal forms of autism. Through the Escher Fund for Autism she promotes and funds research on the genetic toxicology of autism and related neurodevelopmental conditions, and she has served on the governing council of the Environmental Mutagenesis and Genomics Society, where she co-chairs its Germ Cell and Heritable Effects special interest group. She was president of Autism Society San Francisco Bay Area from 2013 to 2019 and, through her family business, Claradon Properties, provides housing to adults with developmental disabilities in the Bay Area. See more of her work at jillescher.com.

https://www.jillescher.com/
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