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National Council on Severe Autism

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National Council on Severe Autism

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Commentary: A full semantic toolbox is essential for autism research and practice to thrive

December 14, 2022 Jill Escher

A new commentary published in the journal Autism Research, the journal of the International Society for Autism Research, counters the call by several neurodiversity advocates to limit language and terms relating to autism. Three of the authors serve on the NCSA board: Alison Singer, Amy Lutz and Jill Escher.

Read it here

Abstract

Individuals diagnosed with autism spectrum disorder (ASD) present with a highly diverse set of challenges, disabilities, impairments and strengths. Recently, it has been suggested that researchers and practitioners avoid using certain words to describe the difficulties and impairments experienced by individuals with ASD to reduce stigma. The proposed limitations on terminology were developed by only a subset of the autism community, and the recommendations are already causing negative consequences that may be harmful to future scientific and clinical endeavors and, ultimately, to people with ASD. No one should have the power to censor language to exclude the observable realities of autism. Scientists and clinicians must be able to use any scientifically accurate terms necessary to describe the wide range of autistic people they study and support, without fear of censure or retribution.

Authors:
Alison Singer, Autism Science Foundation
Amy Lutz, PhD, History and Sociology of Science, University of Pennsylvania
Jill Escher, National Council on Severe Autism
Alycia Halladay, PhD, Department of Pharmacology and Toxicology, Rutgers University

Tags INSAR, research
1 Comment

Autism or “Schmautism”? Reflections on INSAR 2022

May 16, 2022 Jill Escher

Jill Escher reflects on some highlights and lowlights of the world’s biggest annual autism research conference.

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Tags autism crisis, autism spectrum disorder, severe autism, severe behaviors, profound autism, prevalence, autism prevalence, research, INSAR, neurodiversity, actuallyautistic, genetics, hereditary
7 Comments

INSAR to Feature Special Session on Reduction of Severe and Challenging Behaviors in Profound Autism

March 17, 2022 Jill Escher

INSAR 2022 will feature a special interest group devoted to addressing the critically urgent topic of severe behaviors.

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In Profound Autism Tags severe behaviors, profound autism, INSAR
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