Autism rates in the California DDS system have reach shocking new heights according to data released this week.
Read moreNew Review Article—Profound Autism: An Imperative Diagnosis
NCSA leaders helped write a new review paper highlighting some of the overarching issues affecting individuals and families affected by profound autism, and directed at pediatric clinicians. We thank in particular Dr. Lee Wachtel for leading this effort.
Read moreNCSA Submits Concerns About the Autism CARES Act Reauthorization: Now Is the Time for Bold Action
Amid the growing national autism crisis, the Autism CARES Act should be re-invented to address our most pressing needs and explicitly address objectives around profound autism.
Read moreNIH Requests Public Comment on "Co-Occurring Conditions" in Autism
NCSA comments in response to the NIMH’s call for comments on co-occurring conditions in autism.
Read moreThe Un-Jolly Reality of a Profound Autism Christmas
“As difficult as the trip was, I know so many families have even more challenging situations. Many are no longer able to attend family events or venture into the community because of behaviors. In some cases, they are no longer invited or included.”
Read moreWhy I Need the Term "Profound Autism"
“We cannot have equity without development of waivers that consider the basic realities of profound autism. Our children have very different needs than the people opposing use of the term.”
Read moreLost in a "Bermuda Triangle" of Profound Autism
The new memoir Girl Storm by Peg Kerswell reveals a hidden world where inclusion doesn’t apply.
Read moreA New Reference Guide to I/DD Topics
“Essential Lexicon and Resource Guide” offers an overview of our I/DD system in an easy-to-access format.
Read moreThe NIH Proposes Erasing "Reducing Disability" From Its Mission. NCSA Is Incredulous
With this proposal the NIH threatens to jump into a foreign moral universe detached from its core duties and in conflict with its congressional mandates and the urgent needs and desires of American citizens and taxpayers. We oppose it in the strongest terms possible.
Read moreThe TikTok Effect: How the Social Media App Helps Spread Autism Misinformation
“The ‘autism’ I see in general on TikTok is hardly recognizable to me. The misinformation being shared is becoming increasingly dangerous to the autistics with more profound needs.”
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