“If he moved in with me, not only would I live with constant danger and isolation, but I would also face financial and social ruin.”
Read moreThe Lasting Trauma of a Severe Autism Sibling
“The volatility of the environment I grew up in permanently altered my brain…. The world does not seem to understand, nor care, that autism affects more than my brother. Autism has had a severe impact on how I grew up, and the mental health issues I will have to face for the rest of my life.” First of a two-part series.
Read moreThe September 26th Project 2023: An Autism Family's Cautionary Tale
The family was incredibly lucky that Sandhya was home and outside; that the fire did not start at night while the family slept ("It would have likely been fatal," she said).
Read moreWatch: The September 26th Project 2023 Video
When disaster strikes, "sometimes, the outcome is senselessly tragic, forever altering the quality of life for the entire family unit. The September 26th Project is dedicated to raising awareness about emergency preparedness for all families."
Read moreNCSA Seeks Proportional Representation for Profound Autism at IACC
NCSA submitted the following public comment to the federal Interagency Autism Coordinating Committee for consideration at its October 11, 2023 meeting.
Read moreWhen children with severe autism endanger their families, residential care may be the best option
The story of one mother’s difficult decision to place her son in a residential program
Read moreIsolated and Neglected in an HCBS Community Living Home
A young woman is suffering in a group home. Her mother makes an appeal to Kentuckians who have adult loved ones with severe and profound autism.
Read moreLetter Addresses Discrimination Against the Severely Disabled in Federal I/DD Committee
Letter by Dawn Kovacovich to the President’s Committee for People with Intellectual Disabilities (PCPID) points out the committee’s discrimination against those with the most severe cognitive disabilities.
Read moreWhen Profound Autism Falls Off the Cliff into the Abyss
“While everyone “celebrates” autism, no one is coming up with desperately needed solutions for the adults who are most severely affected.” By Alicia Mesa
Read moreWe Need Profound Acceptance of Profound Autism
“It profoundly disturbs me that choices are limited for those who have the greatest disabilities.”
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