What the Latest Version of the House Medicaid Reform Plan Means for Families Affected by Severe Autism
Sunday night, House Republicans dropped their latest plan for Medicaid reform, and it’s got a lot of people asking: Should we be worried? Should we panic? And what should we be doing? Here’s what you need to know—without the spin.
Fish, Chickens, and the Folly of Sameness
My daughter shares about as much in common with a Mensa-level PhD candidate as a fish does with a chicken. Nobody’s handing chickens supreme authority to make decisions for fish just because chickens can bawk while fish cannot.
Society never claims that if only fish grew up in chicken-designed “animal-affirming” environments, they’d suddenly take up roosting and learn to crow at sunrise. There’s no assumption that every fish thrives in the same tank conditions, either. Some need fresh water. Others need salt. Certain fish want solitude, others survive best in schools. The important point: experts don’t consult chickens when they want to understand fish. They study the fish themselves. Wild concept, right?
The Productivity Trap: How Well-Meaning Disability Advocacy Can Reinforce Eugenic Logic
The fundamental flaw in this approach is not that we celebrate independence—it's that we've allowed independence to become a prerequisite for human dignity. The true antidote to eugenic thinking isn't proving that disabled people can be productive; it's rejecting productivity as a measure of human value altogether.
Official Statement from the National Council on Severe Autism (NCSA)
NCSA maintains that:
-
Severe autism requires special attention and services distinct from other forms of autism
-
We face an urgent need for innovation in treatment and support across the lifespan
-
Research into environmental contributors and other potential causes must be pursued through rigorous scientific channels
-
Policy reforms must address the complex realities of continuous care requirements
-
Families and caregivers need expanded access to housing, healthcare, and support services
NCSA Supports Kentucky Legislation to Enhance Group Home Safety for Individuals with Severe Autism
The intersection of privacy rights and protection measures for individuals with severe disabilities presents a complex challenge in disability advocacy. Recent legislation proposed in Kentucky has brought this debate to the forefront, highlighting the critical need for nuanced approaches to safeguarding our most vulnerable populations.
How Many People in the U.S. Have Autism?
Basic data about autism cases in the U.S. are hard to find. Here are some estimates.