“Severe” or “not-so-pretty” autism voices demand a place at the table, and no noisy, lame attempt to shame the advocates over semantics will “cancel” the grim statistics. Severe autism is coming for all of us, actually. It’s time to listen.
Read moreSevere Autism: Stuck in the “Circle of Strife”
An autism mom calls for an integrated care approach for the severely autistic.
Read more"The Big Picture": IACC Public Comment by NCSA President Jill Escher
The IACC has been around for 2 decades, so I think it’s fair to ask, “Are we better off today than we were 20 years ago?” The answer is unfortunately no, we are most definitely not better off today. While some minor battles have been won, we are losing the war, and losing it big.
Read more"A dystopian future where our loved ones have no refuge": Public comment to the IACC
“True advocates … must awaken to the coming tide, if the most needy on the autism spectrum are to thrive and survive.”
Read moreA sister's sacrifice: Public comment to the IACC
“I still dread answering my phone. Afraid it means the police are there again. That there is another hole in his wall that another broken window has sliced his hands and feet.”
Read moreNew Paper Makes Case that Autism Tsunami May Threaten American Economy
The study, Autism Tsunami: the Impact of Rising Prevalence on the Societal Cost of Autism in the United States, by Mark Blaxill, Toby Rogers and Cynthia Nevison, concludes that future costs of autism could be $589 billion/year in 2030, $1.36 trillion/year in 2040, and $5.54 (4.29–6.78) trillion/year by 2060.
Read moreSad but true: "Disability" usually excludes us
SEVERE AUTISM = When you are too over-the-top disabled to qualify for almost all disability programs or housing.
Autism Service Dog Brings Comfort to a Grateful Family
Timon is now invaluable. He helps not only our sons but also helps us as parents better manage the struggles our children face on a daily basis.
Read moreGrowing Older, with Fewer Services
As autistic kids grow up, their needs can increase while services decline. A dad asks, is the system upside-down?
Read moreI am his whole world
Autism parents put a million details into the care of their beloved children. But what will happen when those parents are gone?
Read more