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National Council on Severe Autism

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National Council on Severe Autism

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Jill Escher at TEDx: Five Things You Must Know About Autism — Reality Check Edition

April 15, 2023 Jill Escher

In an April 2023 TEDx talk, NCSA president Jill Escher counters the feel-goodism of Autism Awareness Month by highlighting five difficult truths about the rising national autism crisis.

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In Profound Autism Tags authentic awareness, profound autism
6 Comments

Feda Almaliti: Locked Out of My Refrigerator and Other True Tales from the Life of a Weary Autism Mom

April 3, 2023 Jill Escher

“Autism can be shockingly expensive. Not just the therapies and schools and housing, but the everyday Tasmanian Devil-like damage for which there is no insurance or help.”

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In Profound Autism Tags profound autism, severe autism, cost, expense, tragedy, family stress, Feda Almaliti
9 Comments

April: Autism Awareness or Autism Propaganda?

April 3, 2023 Jill Escher

“Awareness of and advocacy for the realities of autism. We don’t need propaganda. We can educate without being preachy. We can advocate, telling our truths, while being kind to one another.”

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In Profound Autism Tags authentic awareness, autism advocates, autism action month
2 Comments

Latest California DDS Data Show Autism Cases Jump to 160,000

March 28, 2023 Jill Escher

Autism caseload in California’s Department of Developmental Services continue to soar, as of the end-of-2022 count.

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In Profound Autism Tags research, autism, prevalence
2 Comments

CDC: Autism Rates in U.S. Children Continue to Rise — to 2.76%, or 1 in 36

March 25, 2023 Jill Escher

Over 20 years of ADDM surveillance the autism rate has climbed dramatically, more than 4-fold: now 1 in 36, for children born in 2012, compared to 1 in 150 for those born in 1992. Put another way, from .67% to 2.76%.

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In Profound Autism Tags research, prevalence, autism
1 Comment

Prominent Autism Researchers Promote a “Real Life,” Functional Approach to Subgrouping Autism

February 16, 2023 Jill Escher

A new commentary emphasizes the importance of a multidimensional definition of autism severity — including intellectual disability and functional impairment — but stops short of proposing a specific scheme.

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In Profound Autism Tags severity labels, severe behaviors, profound autism, functional labels
2 Comments

The I/DD Homes that Micki Built

February 6, 2023 Jill Escher

In her memoir, Mom With A Megaphone, Micki Edelsohn shares the story behind her creation of 25+ homes for adults with I/DD — and sounds an alarm about the future of I/DD housing.

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Tags Housing
8 Comments

The Trials of Job, Autism-Style

January 19, 2023 Jill Escher

With humor and faith, Clay Boatright holds nothing back in his new memoir of severe autism, love and loss.

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Tags family stress, full-time caregivers
Comment

New Book Details Philosophy Behind a Pioneering Program for Adults with Severe Autism

January 18, 2023 Jill Escher

Bittersweet Farms in Ohio has served adults with severe autism since the 1980s, transforming lives of upheaval and isolation to lives of engagement and purpose.

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Tags Adults, severe autism
3 Comments

"Love on the Spectrum US": A Pageant of Hope and Heartbreak

January 8, 2023 Jill Escher

Dani on a date with Solomon. Image: Netflix.com

Love on the Spectrum on Netflix is a reality show with a lot of heart, and heartbreak.

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Tags autism spectrum disorder, authentic awareness
3 Comments
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