“Essential Lexicon and Resource Guide” offers an overview of our I/DD system in an easy-to-access format.
Read moreThe NIH Proposes Erasing "Reducing Disability" From Its Mission. NCSA Is Incredulous
With this proposal the NIH threatens to jump into a foreign moral universe detached from its core duties and in conflict with its congressional mandates and the urgent needs and desires of American citizens and taxpayers. We oppose it in the strongest terms possible.
Read moreThe TikTok Effect: How the Social Media App Helps Spread Autism Misinformation
“The ‘autism’ I see in general on TikTok is hardly recognizable to me. The misinformation being shared is becoming increasingly dangerous to the autistics with more profound needs.”
Read moreProfound Autism: A Sister Shares Her Fears About a Bleak Future
“If he moved in with me, not only would I live with constant danger and isolation, but I would also face financial and social ruin.”
Read moreThe Lasting Trauma of a Severe Autism Sibling
“The volatility of the environment I grew up in permanently altered my brain…. The world does not seem to understand, nor care, that autism affects more than my brother. Autism has had a severe impact on how I grew up, and the mental health issues I will have to face for the rest of my life.” First of a two-part series.
Read moreThe September 26th Project 2023: An Autism Family's Cautionary Tale
The family was incredibly lucky that Sandhya was home and outside; that the fire did not start at night while the family slept ("It would have likely been fatal," she said).
Read moreWatch: The September 26th Project 2023 Video
When disaster strikes, "sometimes, the outcome is senselessly tragic, forever altering the quality of life for the entire family unit. The September 26th Project is dedicated to raising awareness about emergency preparedness for all families."
Read moreNCSA Seeks Proportional Representation for Profound Autism at IACC
NCSA submitted the following public comment to the federal Interagency Autism Coordinating Committee for consideration at its October 11, 2023 meeting.
Read moreWhen children with severe autism endanger their families, residential care may be the best option
The story of one mother’s difficult decision to place her son in a residential program
Read moreIsolated and Neglected in an HCBS Community Living Home
A young woman is suffering in a group home. Her mother makes an appeal to Kentuckians who have adult loved ones with severe and profound autism.
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